Showing posts with label headache. Show all posts
Showing posts with label headache. Show all posts

Thursday, July 3, 2008

Pitch Perception Test- Real Time Reporting!

As I've mentioned before, I LOVE the pitch perception test (Link found in the right column). It is challenging enough to be wildly interesting, delivers feedback immediately so I can integrate learning into it, and I feel it helps me notice my improvement (or lack thereof) in sound perception.

So... here goes. I find it helps to play it more than once since your results do improve with practice and it takes a bit to get into the "groove." Speaking of groove- let's get grooving with my results!

Hearing aid only (right ear has a profound hearing loss but can hear sounds well above 30db with the hearing aid):

Just for technicality's sake, I wear an Oticon hearing aid (not the best at all) on volume 4, which is the max. I used to hear things with volume 3 but now prefer 4. Whether this is due to my hearing declining or the hearing aid's quality, I'm not sure. There are extremely good high-tech hearing aids out there and then there's the basic ones. Laptop volume is at 51, which is fairly loud but not extremely loud.

It begins at a 96 hz difference. I got down to 24 hz fairly easily, with a few errors which I immediately try to file away in my memory. I get down to 3hz.

This is when I realize: Have I ever gotten down to 3hz? And also: "Has having the implant in already helped me THAT much with pitch perception, even when I don't have it in?"

I am at 1.5 hz now. The sounds don't seem that hard to discern and it seems odd that I would usually be unable to go below 6hz. My personal best was probably 4 or 3hz, on very few occasions. I would usually end at a 24-12hz or begin failing at 6hz pre-op and with only a hearing aid. I hadn't been practicing at this test since before my surgery which was a month ago!

I'm surprised. This is with the hearing aid alone, POST-implant. I would love to consult some surgeons or neurotechnicians to explain why this is happening. Heck, make me into your guinea pig if you wish! It's still not within "normal" scores, though, I believe.

It creeps slowly down, 0.75 hz, 0.375 hz, and with that the test is over. I've moved from a "possible pitch perception deficit" to being in the "low-normal" range. WHAT? I now can qualify as "normal" (albeit a "low" normal), despite my hearing loss?

I think of the Seattle Children's Science Museum and this incredibly fun room filled with body-measuring apparatus and activities, such as "How far can you reach?" and "How long can you hold your breath?" One of them is a TALL "sound measurement" scale. It looks like the "How hard can you hit?" tower with the light bulbs at some county fairs and amusement parks. Except it makes a beeping noise (That I've never heard, I just know it does because it says that on the directions). I was never able to play with it because I could never differentiate the pitches very well AT ALL. Well. I want to go back, see if that thing is there, and play it and see the lights beam up!

I am sitting here, blogging LIVE as I'm taking this test. I'll admit something: I was desperately, secretly afraid that my pitch perception would take a weird dive for the worse for some bizarre reason even though the opposite should occur with my brain's newfound pitch ability. At least with my hearing aid, it hasn't. In fact, with the 4th taking of this test (After hundreds in the past) I have, for the first time, moved from Level 5 (Possible Pitch Perception Deficit) to Level 2.5 (Somewhere between Normal and Very Good). Woah!

Now... to try it with the implant alone. The sound adjustment sample sounds high and wailing, penetrating right into my head (and indeed it is!). Nevertheless, I hear it, which is all I need for right now. The volume on the laptop has increased from 51 to 64. The sounds no longer sound rich and tolerable- they are screamingly high, whiny as a toddler without a nap. My head begins to hurt before I am even through with the first pair. I push on, however. I notice that the "lower" pitches are almost imperceptible but noticeable since they "FEEL" lower and SOUND quieter in my head even though the volume remains the same for both pitches.

No score is given because my pitch perception was too wide for them to measure. That is to say, I fail. My head is throbbing and I wonder if the volume on my processor is too high. I pull the magnet-processor off my head where it falls limp against my palm, flashing its lonely red light. The volume is all the way up. I sigh, haunted by the thought that the louder it needs to be, the worse my ears are. But, of course, this isn't a hearing aid and if it's all the way up it just means my comfort level for sound has increased much more since Mapping #2, which is good. I wonder if it signifies, "My brain is ready for MORE!!!"

I decide to go take a break for a few minutes before I return.

B# or Ship Out

I'm listening to "John Coltrane's My Favourite Things" right now. The beginning sent chills up my arms for some reason (Auditory overload? Amazing music? Both?). But then ... it dropped away a mere minute into the composition. I only have my implant on not my hearing aid, so that could be why. But it strikes me as odd.

What I've really found though, is it takes my brain time to ADJUST. Even if I take it out to check the volume and then put it back on moments after I've taken it out, sound composition drops dramatically until my brain has had time to adjust. It seems odd that I couldn't just jump right back into it but it also makes sense.

I tried it with Ian's iphone, which he wasn't certain if the cord fit the Iphone properly enough to deliver the best sound. I think he said this right after I said things sounded HIGH and oddly distorted. I thought, "Oh no. What if it isn't the cord? I'm not going to say anything..." He turned up the music slowly and then all of a sudden, I pulled my implant out FAST. The sound had increased from a comfortable level to suddenly a painful one, piping into my head and it HURT. After that, Ian had me adjust the volume by myself because he didn't want to hurt me.

I remarked to him that I would for sure have to find a way to "lock" my ipod touch's volume because I can see myself grabbing it and accidentally sliding the volume up and blasting my auditory nerve with painful sound!

Notably, it cannot destroy my hearing or nerves but it HURTS so if it hurts, it follows that nobody would want to do it!

My natural biological capability for music has been substituted by a bionic ear, so of course.... Of course it sounds ODD. The first time I heard a song and tried to really listen, it sounded high-pitched and tinny. The Beatles' Blackbird sounds downright distorted. Where's the metronome? It's no longer razor-sharp clear, distinctly and easily picked out of the song. Even with the hearing aid in and the implant, it sounds HIGH and hardly what I'd call "music."

However, I CAN hear melodies now with most songs. This was a HUGE surprise because I wasn't even listening for it. I was sitting in Ian's darkened music room and oh, it was SWEET. The notes soared up and down distinctively and I finally, for the FIRST time, understood the concept of melody first-hand. I had understood the definition and concept but it was like being told what stars look like without having ever seen them.

Before, I could kind of understand why the melody is "so essential" but didn't really CARE. But... Music suddenly makes so much more sense now. I happily told Ian, "So this is how you hum songs! You follow the melody!" He looked surprised, as if it were common sense..... and of course it is for most people.

I had always thought you hummed just by following the notes and making the timing right, which IS the definition of melody in a sense.... but I had never been able to truly hear the distinctiveness of NOTES in... holy crap, a complex sequence of music.

I think this is one reason why I liked classical music- because it has NOTHING else mixed in with it. It's simply one instrument, usually, and that instrument plays its own notes and nothing else. I have always liked a great variety of music though- but to me it was kind of just like "nice" sounds or "pretty" sounds that seemed pleasant. Again, that could be a definition, yes, but there's SO much more to a star than it just being "a light in the sky."

I took off my implant and listened to a Weezer song with my hearing aid. It was shockingly flat, dull, and empty. I had NEVER noticed that music was simply.... boring with my hearing aid on. It wasn't, of course, but with the implant out the quality and amount I get seems boring now.

I was just always happy I COULD hear and appreciate music to a degree. I've always loved music; my parents were always playing music or instruments and I was always playing around with instruments or dancing. But now I have to laugh at what I comprehended as music. With the implant on AND the hearing aid... oooh. It's so much more distinct. Terrible in some ways, (the high pitches leap out sometimes in some songs, Beatles make NO sense, when my brain is still "warming up" to a song it can take a minute to kick in and make sense, etc) but marvelous in other ways (Melody is FINDABLE which is AMAZING to me!, music seems way more 3D and more complex, and so on...)

I heard stereo for possibly the first time in my life. Left side was the voice while right side was the instruments.... and I went, "Huh. That's an interesting way to arrange it." My initial impression was, "This IS cool and it DOES help. But in a way, I prefer hearing it together, since the implant filters all sound directly to my brain anyway." It'd depend, I guess.

Having my hearing aid on in my right ear helps a TON and adds more "life" and sense to what I'm hearing with my bionic left ear.

My brain likes simple songs right now- because I like the practice of being able to pick out sounds and melodies. I WANT to leap into "complex" songs but I plan to listen to songs like Twinkle Twinkle Little Star as well. That might help a bit. I don't understand how people have such an expansive HUGE music memory at times- how can they pick out which melody a song is from when there's millions of songs out there? I wonder, will my brain ever be able to?

Part of me thinks it will in some cases, because I already am learning what sounds go with what things but I fear that I will lose that sense of knowledge with each new mapping (calibration for my new ear and software!) that I get, since sounds DO change with mappings.

Ian helps a lot by showing me which instruments are playing AS the song is playing which helps a TON because I have something to match with, to what I'm hearing. I don't know how people just naturally develop it, because while I CAN separate the elements a lot easier and find the melody, I find that it helps to such an amazing degree to have Ian tell me what's going on with the instruments/vocals.

It makes me wish I had somebody to walk with me all day and go, "This is what you're hearing!" I walk on the streets without my hearing aid on and just the implant and I hear really odd high pitched noises that I can't pinpoint to anything specific. I turn around, I look upwards, I stop walking, and still it continues and I can't find what it is.

But! One amazing thing was I was walking down the street and I saw a bus about 30 feet from me and I HEARD the doors shut. I knew instinctively it was the door. I didn't have to see the door to know it was the door. I'm not sure if it was my hearing aid, the implant, or the combination of both but it sure seemed louder and clearer and from across the street on top of that! So I chalked it up to the implant. Score.

I will keep you all up to date on how I'm doing with music!

Posts to Come: (A reminder for myself)

*Nerves
*Mapping #2
*Sounds I like/dislike/notice
*Ipod contents
*Pitch perception test.... take #1 after the implant.

Tuesday, June 17, 2008

Barefooted and Bandaged

Hi!

You won't guess where I'm writing this from! It is 8:07 am my time. I went in for the surgery about 1pm yesterday (Monday.)

I stayed overnight but my mom did too, so I was glad because then I at least had someone there, even if she was sleeping most of the time, haha!!

So, right now, I'm standing, barefooted, in a hospital gown. The IV tape and IV is in my right arm, but it isn't attached to anything.... I'm using the computer in my hospital room which I happily noticed had internet explorer. My mom suggested I use it, after I whined a bit just now about how TV was SOOOOO boring and about my eye. My left eye REALLY hurts, like some kind of really bad localized headache... and so does my ear, so I'm keeping my eye shut. So, even though she is probably horrified I'm using this computer, she's too tired to care and she knows what a diversion the internet is for me! :)

My bandages got changed this morning, much to my relief, because it had felt like it was draining or bleeding or SOMETHING, but the doctor said everything looked great. No drainage at all, just some swelling near my upper lobe.

And yes, there is a BIG portion of hair gone.... way more than I thought there would be. I whimpered slightly, thinking about how I had wanted to tell them to please cut as little as possible, and partly surprised at how much WAS gone. I then shrugged. What is there that I can really do about it anyway? Hopefully it gets better!! So I just have to give it some time. My hair is actually finally in a cute bandage-do. It's better than yesterday where my hair was literally sticking up EVERYWHERE. Right now, I just look like I have some 80s aerobics hairdo.... "(PUMP IT UP! Left foot up!") anyone? :D


The chunk of hair that came out came out yesterday when I was feeling my head, in front of my friend Nick and my mom. They both immediately stared at me to gauge my reaction, since I have been trying SO hard to grow my hair out after cutting it really short last year. I stared at the hair. I'll admit, part of me wanted to cry or complain, but I was MORE amused by it than upset. I sighed, hair hanging from my hand, then... "Get the camera, Mom!"

Later, I decided I wanted to keep it (I'm a silly person)... and I noticed PINK streaks in it!! I had light purple streaks in my hair for awhile and some of it (especially on the underside) hadn't come out yet but instead faded to a pretty blond and a fun pink. So... I was delighted in an odd way. "Sweet! The hair that came out has PINK in it! Hah! What a thing to show people!"

I was able to see the side of my head because I brought my camera!! I have pictures of almost everything! Including the first minute after I had my gown on, up till me standing next to this computer. My mom said repeatedly how much of a ham I was. It's true; I'll admit it! I grinned at the camera while they put the IV in. It was actually a GREAT diversion, so I'd recommend doing that for any procedure that is hard NOT to think about or notice (needles, shots, etc).

Oddly, from what I've eaten so far, the food is REALLY good! In fact, I have something called "The Great Northwest Breakfast" coming soon.

"Your choice of Fluffy Scrambled Eggs, or Low Cholesterol Scrambled Eggs. Served with Bacon & Breakfast Potatoes."

Yesterday, a few hours after I woke up, I had some diet pepsi (And a lot of people say that stuff is toxic because of the aspartame (artifical sweetener) in it) so I'm surprised this was an option. I also had a CRAZILY delicious peanut butter and jelly sandwich. Yum....I have a feeling I won't want to chew much, which is why I happily ordered eggs and potatoes. They're both soft!

As for the pain.... I've basically had 2 painkiller pills EVERY 4 hours and I ask for more sooner than 4 hours because the pain is ... well, painful! But it isn't HORRIBLE. I only had a blotch of blood. The nurse told my mom that some people had SO much bleeding that it'd bleed through the bandages. So I've been fortunate. But let's just say: I won't be stopping taking pain pills for awhile! The eye gets SO painful. I feel a LITTLE dizzy but not bad. I heard what sounded like loud screaming in my left ear, anytime I'd get up to walk to the bathroom and sat down. Not that bad though. It's not constant at all.

By the way: In the end, I REALLY AM glad I stayed overnight!! It's been nice. Delicious food, a bed that moves up and down, my mom nearby, and my camera if I want it.

I can't wait to go home though! I just hope it isn't stressful because there's kids at the house and it's a BIG mess since they just moved my stepdad's stuff (1500 sq feet) into a house! Mainly though, I can't wait to see everyone!! My siblings, my stepdad, my dad (hopefully), my best friend Tess, and Ian. I'm hoping to call Abby (my old best friend) at some point. I am so lucky to have so many people. :)

Pictures'n'more later! <3my>Northwest Breakfast is here


Friday, June 13, 2008

T-Countdown.....3 days?


So, after scaring my poor, sweet boyfriend because I was having all the symptoms of a stroke (?!) except for the headache... haha. Never mind. Basically, I was acting weird like almost out of it and unable to follow with a constant train of thought, had HIGH sensitivity to light, and he thought one side of my face was lopsided. (My smile is lopsided, as it turns out. This we know now.) Not a result of a stroke or anything! Either way, I'm fine. :P But he had me whimpering when I looked in the mirror. My smile IS not balanced. Is my eye really twitching? Oh nooo!! But it is great to know I have someone who cares SO much that he would call the paramedics just to make sure. Better safe, than sorry, as the adage goes.

The arm is MASSIVELY better. All the pain and weird symptoms were due to the shot. Odd..... because normally I don't get more than aching from a shot.


My mom is IMPOSSIBLE to reach despite her having a ton of phone numbers with which to reach her at and despite her husband having a cell too, they both rarely answer or at least when *I* call. GRRR. It's really really aggravating. So, I just called the hospital to find out when I'm supposed to be there.

The actual surgery should be around 1pm, but I need to be there at 11am, in the surgery ward! No food after midnight, clear drinks till 7am. :) I think I got it! Not too bad. My goodness! The amount of digits I'm holding up really shocks me... only 3 days left?!

Wednesday, June 4, 2008

Sleep Well? Hardly, but amusing anyway

So, I have a long history of having nightmares or downright bizarre (but usually amusing) dreams. It's like my subconscious really likes to regurgitate little thoughts and fragments from my day and spin out a really crazy vivid dream.

I thought I'd share all of the dreams I've had about cochlear implants so far. There's only been two, but when I think about it, I think that some of the regular dreams/nightmares (after the 2nd dream about implants) have had me with a cochlear implant. (Like it's a normal thing!) So I think my mind has somewhat adjusted to that aspect of "identity change" or whatever you would call it. It's really cool, because in the dreams I remember vaguely thinking, "Huh, I have an implant in...." and then just accepting it.

So, the first dream I had was very simple. It was Activation Day! So the audiologist told me to put the processor on, and I did. But it was odd because it hurt a little. The magnet was pressed against my head SO hard that it was ridiculous! The audiologist explained that it was normal and that I wouldn't notice after awhile. The processor was numbing my head a little! I asked, "Should it really be this magnetically tight though?" Then, I just said, "I don't care though. I'm glad because I'll hear! That's what matters!" So Tina turned on the computer and I heard long beeps and the implant pressed against my head even tighter and I woke up!

The second one was about two weeks or so after this one, and it was about two days or so after I had seen this really funny zombie movie called Fido. In it, zombies come to life but are capable of being controlled by wearing a special collar. There was a character in it who actually loved his zombie, but the rest treated their zombies as pets or slaves.

So, the dream was essentially like Fido, except instead of zombies it was robots/cyborgs. More robots though. And at one point, I informed my mom, "Some people LOVE their robots. You know, like actually love them..." and my mom went, "Eww! That's so wrong! That's weird."

I could understand someone becoming attached to anything.

But then somehow it turned into being a bit offended and going, "Well, Mom, I'm a CYBORG and you aren't complaining about people loving me."

Suddenly, all the people that had been around us gathered together and others joined a big MOB formed. They started getting crazy and shouting, "She's a cyborg! Collar her! Get her under control!"

My boyfriend showed up and said this line we both think is really funny (from an anime called Fooly Cooly). "Mixing robots and cyborgs up is a common mistake."

He then calmed the crowd down and insisted it'd make a good movie, so he and I grabbed video cameras and started filming people who, in turn, started "acting." Peace and understanding prevailed. :P

Note: I posted a blog for May 29th that I hadn't gotten around to posting yet! But a question in it was: other than recording what sounds used to sound like to you and keeping a blog, what else did you do or wished you had done, BEFORE you got the implant??

And if you don't wish you had recorded what sounds used to sound like to you, is it because you easily remember what they used to sound like? And are you now forgetting and having them replaced with what you hear with the CI now?

Also, I will comment you all back! Sorry for my lateness :) I really appreciate all your input/thoughts/experiences

Edit::: July 2nd, the first full day with the implant, I had a dream while taking a nap on my couch. I dreamed essentially, that my head hurt REALLY bad due to a bag of radioactive magnets (?!) that an "evil scientist" had brought into the room. I hung it up so I would know where it was and so I could keep away from it, and then I kept thinking, "The other side of my head hurts too! The magnet in my head is REALLY reacting badly, isn't it?" I woke up and realized my right side (non-implant side) was on the couch's sharp corner and that the fan was whirring which hurt the left side thus contributing to the all-over headache and head pain! No radioactive magnets here, folks.